When I started this blog it offered me the chance to explain express the things I was going through with the onset of MG.
At a time where I was struggling to see straight and unable to talk without a comedy speech impediment it was a relief to be able to communicate even if I was unsure if anyone was reading it.
I have just looked back through some of it and it struck me that it is so easy to forget how things were just a couple of years ago. It also occurs to me that it remains incomplete without a final chapter.
The thymectomy to which I refer in the pompously named 'Chapter 28' went fairly smoothly in July of 2015. It was intended as a 3 apeture keyhole operation, my thymus was however a career record breaker, being the largest my surgeon had ever removed, weighing in at nearly 300g.
As a consequence it required a total of 7 holes and an hour and a half of effort by the surgeon.
Excited by its size he photographed it on his mobile phone, showing me and emailing a copy of the photograph to the surgeon in Canada that trained him in this proceedure.
It looked like an oversized ragworm about 200mm long and with what looked like legs along its length in a dark liver red colour, in all pretty hideous but with a bit of garlic and a squeeze of lemon who knows?
On a subsequent bed visit I asked him if I might have a copy but he declined explaining he had been reprimanded by his boss for photographing it, I suggested that he need not let his boss know at which point he introduced me to the man standing next to him ( his boss)!
So with my chances rated at a third for no change, a third for a marginal improvement and
a third for a full recovery I waited and began to wind back the steroids as instructed.
Around October 2015 I went to meet my hero and neurologist Doctor Richard Armstrong who seemed fairly confident that the operation had worked and that I was in a complete remission.
At this point I was cautious in my own assessment because although I was symptom free it seemed to good to be true.
Last month I visited him for what should hopefully be my last appointment and I too am now convinced that I am free of MG and that it is consigned to the virtual pages of this blog.
So dear reader its a fond farewell from me until and unless I find myself afflicted with any other diseases with creative possibility.
I shall miss this blog but not the shit disease.
The End
